You are currently browsing the archives for the family category.

I Was Just Wrong

May 3rd, 2010

My daughter is on a mild anti-depressant/anti-anxiety medication. For about two years (slightly less, actually) she’s taken it and it has helped.  She still goes to talk therapy on a regular basis, she still gets worked up over things, but I had the impression that her “worked up” is no longer getting in the way of her getting through the day.  I was wrong.

Every month when we have her medication management appointment with the psychiatrist, the doctor asks if Princess ever has thoughts of hurting herself or other people.  She always says she does not.  She told us that last Thursday, so we refilled the Rx with the same medication at the same dosage, because I thought it was working.  I was wrong.

Today I got a call from the school counselor that Princess was saying that she sometimes thinks about hurting or even killing herself. That she’s been getting messages through her account on one of the online game sites (the independent one with the upper age limit of sixteen, not one of the ones she accesses through Disney or Nickelodeon) with foul language and threats that this person is going to find who she is and where she lives. That after being upset by this person’s messages one time a couple weeks ago, she saw a knife in the kitchen and just wondered what it would be like if she just picked it up and stabbed herself so it would all be over.

I thought I was doing the right things to monitor her online activity. She does not use the chat room on this particular site, and when she is looking for games to play, alone or with her little brothers, I urge her toward the the ones allied with the children’s channels or ones that I know have a fairly strict filtering mechanism for user messages. I thought I had developed an open line of communication with my children about what’s going on in their heads. I was wrong.

The school had a speaker last week to teach the middle school students about cyber safety and cyber bullying. She and I talked about the presentation, and all of the things online that are OK and not OK to say or do, the things that are OK and not OK for someone to do or say to us. I didn’t think we had a problem. I was wrong.

I’ve got a message into the psychiatrist who handles her meds and am trying to get an appointment this week with the LCSW she sees each month for her other counseling.  We are going to review her messages tonight (the ones she has not deleted) so we can report the user sending her the offending messages.  I am going to protect my daughter and she is going to be OK. 

I really hope I’m  not wrong.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

One year

March 17th, 2010

Today is Tuesday, March 16.  The day started fairly mildly- no one wanted to wake up, but we managed to get awake and fed and medicated at something approximating “on time.”  One year ago today, I think the day started just as mildly, but it didn’t stay that way.

By 10:30 a.m. on March 16, 2009, Hoss had run far enough away from the school building to have needed the police to be called.  His escaping behaviors and his total lack of understanding as to the reasons why I worried had become more than I could handle.  By noon, I had picked him up from the school and was on my way to take him to the emergency room to request a psychiatric consultation and recommendation for admittance for an inpatient evaluation.  The school counselor followed me to the hospital (regulations prohibited her from driving us herself) and, with the full support of the administration, she stayed with me for four and a half hours as we met with doctors and nurses and explained Hoss’ outbursts and his behaviors in which he put himself in harm’s way.  After the counselor left, I spent a few hours with Hoss in the psychiatric wing of the hospital as we waited for paperwork and transport to the child and adolescent unit at Sheppard Pratt.  My husband came by and stayed with us until after dinner and followed us to the pscyh hospital.  My mom spent the night in Hoss’ bed, since it was nearly midnight when we returned home, and I didn’t want a tired, worried grandmother on the road.

I am sure Hoss has no memory of the date, and only hazy memories of what happened that day.  But it is going to eat at me all day long.  He’s come so far in the past year, but we’ve had some bumps of late and I fear for what they mean.  His regular monthly appointment with his doctor is tomorrow, and it may be time to adjust medications to account for his growing system.  I have learned so much about pediatric mood disorders in the past year, and yet I have so very much that I still don’t understand and that I can’t handle.  I have a lot of years ahead of us that I need to deal with.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

The Friction In Your Genes

March 1st, 2010

It’s not until he mentions it that I realize that he’s funnier than he’s ever been before.  I’ve been sitting here, drinking coffee with him—my middle brother, 3.5 years my junior—for an hour, maybe.  And I’m just now realizing that I’ve been laughing with him far more than I usually do.

Funnier, yes—and talking fast, loud.  I can barely get a word in edgewise as he quips, his words darting faster and all around me.  He pulls faces, laughs, then stops.

I feel stupid, because I maybe wouldn’t have noticed if he hadn’t said anything about it.  Quieter, now—“I’m going to go see somebody, one of the counselor’s at school.”  He talks about how he’s fucked things up, how he lost his girlfriend of more than a year by being stupid.

He’s the same age I was when I fucked things up.  21 and change.  The age where everything starts to come together, when your body feels electric with the burden of the future and the prospects of freedom and responsibility start to wind themselves around your ankles.

And I envy him, if only a twinge, before I am suddenly scared for him.

***

(remember)  What it’s like to be told in a room by a man that you have a chronic illness that will never go away.  And it’s something that’s inside you—it’s something that you’ve always thought is you.  Because it’s in your head—in your brain—it’s hard to separate out the sick part.  You start the never-ending data-mining, the perpetual jump through funhouse mirrors—you decide what to keep and what to put away in a box marked “other.”

You are stricken by two dual forces.  One.  You would never wish this fate on your least favorite person.  Think about childhood bullies and mean bosses.   You may wish for them to die, but you’d never wish for them to feel this way.  Two.  There’s a genetic component.  A much higher likelihood than you’ll admit that someone you love will do this too.

These forces get inside you and they explode your heart.  Pieces of it go everywhere, flying into all of those they love.  You understand that quote about your heart walking outside of your body.  You live with it every day.

***

And still, I dare to dream about a normal life, ignoring the fact that I took a left turn from normal years ago.  Once upon a beautiful time, I had a coherent line of sight.  I was engaged, had a wedding planned for June 14th, 2008.  I wanted to go to school, get married, start thinking about children.

The words “bipolar disorder” make everything so fucking complicated.  When they find out that we’ve been dating for seven years, even casual acquaintances ask about a ring.  I laugh it off.  I say that we’re taking our time.  I don’t mention that we were engaged.  I don’t tell them that we’re not engaged now because I contracted a case of the crazies and went about fucking schoolboys while my fiancé worked at 5 AM on Saturdays to pay for my ring.  When I think about it, my jaw starts to hurt from the clenching of my teeth.  My lungs are filled with air that won’t be pushed out.  I take a look at the path at the fucked-up path of burnt-out bridges that lay behind me.  How do you explain this?  How do you make sense of something that feels so senseless?  How do you do anything but move forward, blindly, spouting platitudes and bullshit about taking your time.  Taking the long way.  Going the whole distance around your ass and still, somewhat improbably, coming out ok.

***

In the review session for my neuroscience final in my first year of medical school, the question is posed: “What is the heritability of Bipolar Disorder?”

The answer I’ve learned to parrot is:  “Autosomal dominant, but with partial penetrance.”

In my head, it sounds more like: “You are playing Russian Roulette with your future children’s lives.”

In these moments—among others—I am forced to contemplate the ghost-children who will someday tumble out of my womb, with so much potential for brilliance and pain lying latent their skin.

In the dark, I will whisper to them that my genes do not determine their fate.  Then—and now, even now—I will whisper it to myself.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

Knots

February 23rd, 2010

I’ve had a lot to say, and yet nothing to put to words.  And time has just slipped away from me, as I let myself get pulled into the swirl of holiday planning and meetings and snow days and doctor appointments and life in general.

During the snowstorm earlier this month, I was knitting a pair of gloves.  I had leftover sock yarn, a funky self-striping pattern, and I found a pattern in one of my magazines for fingerless gloves with mitten hands to fold over them (that probably makes no sense whatsoever, but I suppose what I was knitting isn’t the point of the story).  I started a new skein of yarn for making the mitts with the intention of picking up the pattern somewhere near the same point in which the hand pattern fell.  That way the stripes would match up, there would be no jarring change in the color sequences.  I pulled the yarn from the center of the skein, and instead of unspooling neatly, it came out in a huge tangled clump.  I worked at the clump to untangle it, winding the yarn into a neat ball as I went.  I was bound and determined to have my tools perfectly ready so I could make this glove coordinate, make the patterns align.   I worked at that gigantic tangled mess of yarn for close to two hours- I didn’t realize how much time I was spending as I was going, I was just focused on the task at hand.

Then the yarn broke.

That tangled mess of yarn became a metaphor.  In the end, I started the mitt part of the project at a slightly different point than I’d intended to, since I wasn’t able to properly judge the coloring to make it perfect.  I know that there is a glitch in my mitten.  I had an extra yarn tail to weave in at the end because of the split, so there are technically two glitches from having to add an extra joint. No one else can tell.  No one else would think to look.  I spent a ton of time trying to work through a problem that wasn’t really all that much of a problem, and instead ended up damaging my yarn.  The final mittens are warm, and they are a quirky pattern that makes people smile when they see me wear them.  I made a mistake and I recovered from it and it didn’t detract from the final outcome.

I’m not always like that with my knitting, I often turn my goofed up stitches into ‘design elements,’ but I am like that too much with my life.  I spent so much of the past year worrying that the decision to put Hoss in the hospital or the delay in getting him into another therapy group or my losing my temper with him when he can’t focus is negatively affecting his daily life.  I see his outbursts, which are less frequent and less intense than a year ago, and I wonder why I haven’t been able to give him the tools to stop them.  I get so entranced by untangling the knots that I forget to go ahead and start the damned stitching so the mittens can be ready to wear.

We are rapidly approaching the first anniversary of that hospital stay.  I’m alternately thankful for the progress he’s made and the help we’ve gotten from the school and the doctors and my family and everyone, and being scared of becoming complacent.   I don’t have a pattern to tell me how this is supposed to turn out.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

The Ones We Leave Behind

January 28th, 2010

My mom has an incredibly annoying habit of starting conversations with me with the phrase, “What’s wrong?”

Example:  It is the day after Christmas.  I have been downstairs eating cake for breakfast in my pajamas.  I walk up the stairs and see my mom.  Startled, she looks at me.  “What’s wrong?”

Nothing. I say.  I was just eating cake downstairs.  Everything is perfect.

Example:  My mom calls me on the phone and leaves a voice mail.  I return her call.  She answers the phone—no “hello”—but “What’s wrong?”

It wasn’t always this way.

***

I don’t know what it is, what makes her do this.  It unnerves me to no end, makes me feel like she’s always on edge.  I have my theories, of course—that our relationship is forever changed by the knowledge of my mental illness, that she feels guilty that she didn’t know I had so many problems.  Guilty because she discouraged me from getting treatment the first time around.  Scared that it could happen again, a snap of the crazy finger and everything changed, or gone, again.

Once, when I was 21 and in the middle of the arduous task of being diagnosed with bipolar disorder, I spent the night at home.  It was Daylight Savings Time, the one where you spring forward and lose an hour, the same lost hour that started everything the year before.  The boy and I were both upset—him with me, and me with myself.  In the middle of the night, I slipped out of my bed and left a note saying I had gone to sleep at his house.  Later, in the early hours of the morning, someone shot a gun outside my house.  My parents awoke, saw I was out of bed, and immediately feared for the worst.  I got my mom’s panicked call on my cell phone, out-of-breath and hysterical.

I’m here. I said.  I’m alive.

But it was eye-opening, having a glimpse into the fears they had about my life and my illness.  The fact that they thought it could have been me has always shaken me to my core.

***

An essay on suicide and its presence in my life:

In 2002, a month before starting my senior year of high school, one of my best friend’s fathers committed suicide in the woods outside their house while no one was home.  Her mother, out of town and worried that she couldn’t contact him, called my friend on the phone and my father, brother and I drove home with her.  While we were in transit, he was found dead.  One of his employees knew me and knew that I was a friend of his daughter.  Trying to track her down, they called me.  We were halfway there.  We pulled over in the rain and I got out of the car.  At the age of 17, I had to tell this girl that her father died, that he’d committed suicide.  And then there, in my arms, were the pieces he’d blown apart with his gun.  I held the one who’d been left behind.

Last week, one of my closest friends called me—after a string of numbed-out half-started words, he finally choked out that he’d lost his college roommate.  I went over to his house and we sat outside as he smoked cigarettes.  He told me about the questionable nature of the death, about the erratic driving and an overcorrection of the steering wheel that flipped a car and left its driver DOA.

“His father told me that he’d been on pills, and I knew that he was having some problems.  But nothing like this.  And he never told me how he was feeling.  He never told me.  Why wouldn’t he tell me?”

He was asking because he knows about my experiences with mental illness, because he knows that I’ve been depressed.

So, I told him the truth.  That sometimes we don’t tell the people who are closest to us because we don’t want to change their perceptions of us.  We don’t tell them because we can’t bear the sideways glances, the frightened looks that make us feel crazier.  That we can’t stand the thought of hurting and worrying the ones we love.  That when we tell the closest ones, that’s when it really hits us.  That’s when it’s real.

It’s easy to tell strangers and people you’ve just met.  They don’t have any emotional investment in you or your well-being.  They don’t worry at night or when you call them on the phone.  They never will have to ask you, “What’s wrong,” and be scared of what the answer might be.

So he’s quiet and drunk and upset—all the things I’ve been before, when someone I knew unexpectedly died.  And he looks at me, and repeats himself.  “I just wish he had told me.”

And here I am, once more—holding in my arms one of the ones who’s been left behind.

***

It’s not my intention to proselytize or blame.  I’ve been on both sides of the matter, flipping back and forth like a metronome from experience to experience.  I know what it’s like to wallow in desperation and sadness that feels like it will never end.  I’ve visualized it in my head a thousand times—what it would look like to rake a razor down my wrist, what my feet would look like hanging from a rope or the moment of clarity I would have just as I jumped.  I’ve wished for cars to hit me in crosswalks, and I’ve thought incessantly on rough days of turning the steering wheel and careening into a tree.

But I know, too, about the ones we leave behind.  Friends, family, teachers and acquaintances.  The ones who will sit in doorways, mouths drooping with cigarettes and veins running with vodka, the ones who will ask “why” and “how” and blame themselves, no matter what anyone else tells them to the contrary.  I’ve been there too many times, and the pressure of these times is always enough to push me back.

But in the light of this most recent experience, I feel guilty for being so frustrated with my mother.  She asks “What’s wrong?” because she worries that the time she doesn’t is the time it will matter.  I want desperately to tell her that she shouldn’t worry.  That the truth is that, if that time came, she wouldn’t be the one to know.  No one would.  Our hearts are full of secrets and lies, of deceit and worry and fear, of questions that have no answers.

But I want to reassure her.  I want to reassure all of them.  “Don’t worry,” I want to whisper.  And even if I can’t guarantee it, I’m pretty sure.  If I could, I’d write them all promises.  “No matter what, no matter how hard it gets—I won’t leave you behind.”

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

Premature Evacuation

December 10th, 2009

I work at 30 Rockefeller Plaza. As you may know, each year around Thanksgiving, a giant evergreen tree is trucked in and trussed up in time for the televised “Lighting of the Tree.” The tree is big. It’s so big that decorating it takes weeks. And scaffolding. Lots and lots of scaffolding.

Now, this is only my second Christmas in NYC, but I’ve already got my own ritual for this event. I, along with everyone who works in the building, evacuate at 3pm before the crowds gather to watch the tree get blown up and sung to by rock stars.

Occasionally, I get irritable in New York. Sometimes when I’m walking and people (confession, I call them tourons, but I don’t mean you) stop on the sidewalk and impede the flow of foot traffic, I clench my jaw and widen my eyes in exasperation as I pause and wait for a path through to make itself known. I walk quickly, but I don’t run over people—they more or less veer into my path, like cicadas bobbling into a windshield.

As I’ve said on Twitter, if you lack the spatial awareness to step aside when exiting a door, elevator, or escalator, you’re probably really bad in bed.

Occasionally, as I walk through the city, I’m glad for the jostling, because it makes me feel connected in a sea of well-dressed anonymity. At these times, I’m filled with the spirit of kum-ba-yah, and I’ll often find that I’m smiling to myself. It’s not forced, it just happens. Who knows what brings it on—maybe I had a really good doughnut that day—but I certainly prefer being at peace with humanity rather than being a steaming bowl of annoyed.

But I digress. This post is supposed to be about managing mental illness, right? And, as I type this, it’s 8 days late according to my self-imposed monthly deadline. I’ve known I wanted to write about the holidays for at least a month, so why have I stalled?

Because I kind of hate the holidays.

And believe me, there are reasons.

This is a whole book, this here topic of me and the holidays.

It’s genetic.

No, really.

It started with my grandmother.

Okay. [Deep breath.]

My grandmother was a Jehovah’s Witness. She wasn’t born that way. She chose it. And she was one of the 144,000 who are actually going to join God in Heaven. Well, she’s there already. She died six years ago this month.

I hardly knew my grandmother. My few memories of her center around rare visits during which I watched her shove vitamins down her Siamese cat’s throat and slather enormous quantities of hand lotion on herself and anyone within arm’s reach. Once I turned age 12, these visits stopped. With a complete lack of irony, my mother said she didn’t want my grandmother to hurt me the way she had hurt her. There were a few feeble attempts at communication over the years, but that ended when I got a note from my grandmother saying how worried she was because I was going to burn in hell for going to college.

You may know that Witnesses don’t celebrate holidays. My mother grew up never celebrating her birthday or Christmas. This of course meant that the holidays assumed an importance to her that was…spectacular.

I don’t remember a single holiday from my childhood (I’m talking even Independence Day) where my mother didn’t end up yelling. As I got older, and began to stick up for myself, her screams turned to sobs that I had caused by…well…by sticking up for myself. I was hollowed out after each encounter, and once I realized this pattern wasn’t going to end, I began methodically desensitizing myself by unplugging emotionally from the holidays as best as I could.

I evacuated.

One way I learned to manage the holidays was to encourage group gatherings. On those lucky holidays, we’d celebrate at a friend’s home, and keep the crying and humiliation confined to the car. (And here the memories are starting to come back. Ugh.) Another way I learned to manage the holidays was to stop going home. Of course there were repercussions to this decision, but it felt like survival more than a choice. For the most part, my mother has understood when I’ve chosen not to go  home. As much as she has lashed out, there’s always been a part of her that has known things were really messed up and simply not known how to fix it.

Now, my grandmother had been a traveling private nurse, and in her late 60s, she checked herself into a nursing home because she said she was ready to let people take care of her. It was her turn. She then went and lived for another 20-odd years. To me it just seemed like giving up. My mother said for years that she thought her mother might die soon, but this time, in 2003, I knew it was serious. I hadn’t planned on going home for Christmas that year, but my mother sounded destroyed by what was happening to her mother, so I was down in Florida at the nursing home the next day. All three of us were in the room when my grandmother left this world on December 18.

I’ve written elsewhere at length about what transpired in the days and weeks following. We had some wonderful talks as we parsed apart the legacy of choices that had led us to where we were. But then something snapped and there she was, glaring and furious because I had rolled her coins. (Funny because it’s true.) I remember saying, as things devolved, “I never understood why you kept me.” It wasn’t an accusation, it was a genuine question borne out of the confusion I’d always experienced at being told I was loved one moment and treated with contempt in the next. She quietly responded, “I don’t know why I did either. There were plenty of other people who would’ve taken you.” She later clarified that she meant that, for all she gave up in order to raise me, it seemed that it was all for naught because I didn’t know that she loved me.

I’ve only called a suicide hotline twice, and this was one of those times. It actually ended up being funny. The fact that I had counted out my sleeping pills wasn’t what scared me—it was that I was suddenly deeply altered, like I had checked out. I was calm, affectless, and almost in a trance as I counted. The very freaked-out part of me that wanted to live then promptly sat on the floor, sandwiched herself between the bed and the wall, and called a hotline. I was on hold for so long—what with it being the holidays and all—that by the time I finally reached someone, I basically said that I couldn’t take up his time when there were clearly so many people needing help right then. I didn’t know at that time that the name for one of the conditions I had was Passive Suicidal Ideation, but I knew enough to know that, even though I wanted to give up because I couldn’t seem to find a way out of my pain, I wouldn’t really *do* anything, as seductive as that thought was at the time. So I hung up once I felt connected again.

The next day, after my zombie self unlocked the bedroom door, my mother came in, sat down on the bed, and made a solemn promise to me that she would never let an event like that happen again. I snorted a little because I didn’t believe her—belief like that costs too much. I remember thinking that’s right, it wouldn’t happen again, because I’ll do my best not to be that vulnerable again. I told her, “You can’t promise that.”

I don’t think my mother has ever really had a full round of therapy. I can’t imagine how hard it must be to navigate her particular emotional minefield without professional support. I know I wouldn’t have made it had I not had the help of others far smarter than I. I remember thinking at the time that if it were that easy for her to stop ridiculing me, why had she tormented us both over the years. I didn’t believe she had that kind of control over herself. But, I guess I had scared not only myself, but her as well, so even though she lacked the understanding, she made a choice of will to never behave that way again. I had forgotten she’d even made the promise, until she reminded me recently. I have to say, I think she’s kept her promise.

And I think maybe that’s love.

In a few weeks, I’m visiting my mother for Christmas. She’s been so self-aware lately that I recently asked her, “Are you getting therapy and not telling me?” (Answer: No, but she’s had time to think things over.)  I’m not hoping for a wonderful time, but I’m not dreading it like I used to. I’m actually a little optimistic, because you have to be, right? But I’m also on guard just in case, because I know there’s a part of her that is so hurt that she might lash out. And there’s room for that now without it making me crumble. It’s my job to defend myself, though it’s still new and difficult—it feels like I’m not allowed, like it hurts her.

Whew. Okay. That wasn’t sooooo bad.

The holidays can be rough for some of us. There’s not enough time, not enough money, not enough warmth and ease. We each find our ways of coping with the strain—I know I deliberately let myself get a little numb. I evacuate. I have my rituals of checking out. Where I used to love singing carols and decorating my home, I just sort of don’t go there because it would make me sad. And I used to love giving gifts, until the lean years when I was embarrassed that I couldn’t afford to give them. So my protective choice to emotionally ignore the holidays means I don’t appreciate the outdoor festivities, but I do have friends who get excited, and that makes me happy, because even though I don’t look forward to the holidays, I understand that for some, it’s a time of renewal in the midst of the bitter cold. For others, it’s a time of grieving. For me, this year, it’s a time for both—I know the holidays will probably always be a trigger for me, just like they are for my mother, but I also can slowly begin to let my guard down and hope that it might be just a little different this year. Which is terrifying, by the way.

Many people are struggling with mental illness, and some also are fending off emotional violence in the home. I’ve never felt ashamed for having had depression and all those other things. In a way I sometimes think I’m lucky because the root cause of my depression wasn’t chemical, it was external, circumstantial, a problem to be solved. (Though I’m guessing the decades of depression had a chemical effect.) I’m still working on telling my story in a way that doesn’t hurt my family by revealing too much of their part in things, but I’ve always believed that sharing our stories can heal on both ends of the transaction.

And I believe that I am entitled to my story.

Sort of.

I’m working on it.

Now if you’ll excuse me, I have to bundle up and head home through the holiday crowds on Fifth Avenue. I have gifts to buy.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

10… 9… 8… Counting Down to Heartache and Holidays

December 9th, 2009

The countdown at casa de Miriam is on in full force.  We have the paper strips cut and ready for glitter glue, stamps and taping into chains to hang and confuse visitors.  There is the Hanukkah chain.  December 11.  The Christmas chain.  December 25.  Wee Girl’s 4th Birthday!!! December 31.  New Year’s Eve.  December 31.

There is no chain to count the heart wrenching marking of days that began sometime in the last few weeks and surprised me with its “still crazy after all these years” presence.  My daughter’s birthday is, oddly enough, also the anniversary  of her birth and thusly of what is one of the worst days of my life in spite of the amazing ten fingered, ten toed little beauty that came with it.  New Year’s Eve 2005 marked the beginning of years of a new sort of distress that my brain wasn’t used to regardless of the years of training in mental dysfunction I had.  Post-partum depression and a fresh batch of PTSD.   I hid it mostly, for the first year but by her first birthday I was shocked to wake up in a sweat.  Not long after that I was waking up very differently and without my little girl beside me.

I have worked so blessed hard to get better from this, let alone the mental and physical scars from days gone by.  But each year as December rolls in my chest tightens and breathing gets that much harder to manage.  The spirit of celebration is masked by fatigue, flashbacks and restlessness.  Fear and anticipation of The Day’s arrival choke me and leave me feeling split in two with a cleaver, as though anybody could see the wretched ache inside me.  Anybody could prey on it.

Yet this is my precious little one’s birthday and I should be struggling with pink streamers, glittery balloons and foolish party hats- not symptom control.  I know though that I need a second by second plan for that day from the moment I wake up to when I take an extra sleeping pill to fall asleep.  Without a round the clock plan there is too much room for emotional disaster.  4 years after my baby was taken from me so easily while I cried out until I was helped to calm down by a syringe and an anesthesiologist who turned blurry in seconds- and I am still stuck.  The distance is still there in little places throughout the year but on what should be her day and her day alone I am still having to distance myself from the moments, the day, from HER.

I would like to say that I will return this topic and release more.  Not just for myself but because somewhere inside me I know I must not be the only one.  And I DO believe that I am not the only with anniversaries of pain and mental paper chains to count down.  However, I am still not through the paper links.  There are still rings for children to argue over ripping before the arrival of that day of days.  The day when the whole world celebrates a fresh start, my daughter is showered with “my haven’t you growns” and I pray for a knock out pill that will keep me standing but get me through the day without feeling the sharp sting of tears or pulling of scars.  So I can’t really say that I’ll get back to this soon because I don’t want the pressure and I don’t want to rope myself into failure right now.  When the time is right I will share more and as always I welcome (very nearly plead with) you to share with me, on site or via email.

My daughter is nearly 4 years old.  Not a baby anymore and oh so bright and beautiful.  She is my love and my light and I hate and fear that one day she will read my words.  I never want her to blame herself for my swollen eyed, frantic Decembers and stumbling Happy Birthdays.  I never want her to feel the depth of my depths and feel like she dug the pits herself.

I hope that she will teach me to love December 31st for what it is- her birthday and New Year’s Eve.  I hope that one year I stop calling it the anniversary of her birth and my mental countdown will disappear.  I will only hope to be able to stay awake long enough to watch the ball drop with her and the rest of my family beside me.  She was born on a day of worldwide celebration.  There will always be a party on her birthday (god save me on her 21st!) even if I can’t throw it.  Her bounce, her giggle and her clarity of vision has fueled my breaths, my heartbeats and my kisses for 4 difficult years that I would never trade.

Post to Twitter Tweet This! Post to Delicious Delicious Post to Digg Digg This Post Post to StumbleUpon Stumble This Post

Twitter links powered by Tweet This v1.6.1, a WordPress plugin for Twitter.