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It matters not how much you fall, but rather how often you get back up

September 3rd, 2010

Princess is back in the hospital. School started on August 25, and I have been monitoring her homework (checking her agenda book and comparing it to the completed work in her binder) and asking her about her school day and doing my best to keep the line of communication open. She met with her therapist on the Saturday before school started and again this past Saturday so she could first prepare herself to return to school and then process the first (partial) week of school to assess its success. Everything seemed fine.

When I picked Princess up from her aftercare program on Tuesday, I had a message that the school counselor wanted to see me. Princess and I gathered her things and sat down in the counselor’s office to talk. The counselor relayed that another student came to her to say that Princess had indicated that she was planning to bring a knife to school for the purpose of stabbing herself or cutting her throat. She’s never articulated a plan before, and never expressed thoughts so boldly violent. The counselor advised me that she would need written confirmation from some mental health professional regarding Princess’ abililty to return to class.

We made an appointment with the therapist, and Princess was vehement in saying she did not want to go back to the hospital. She later had an outburst that culminated in her locking herself in the bathroom, refusing to speak to me, and I told her through the door that if I could not get the key to work, I would call 911 and have them break the door down and take her to the ER in an ambulance. She came out, and finally admitted that her thoughts were too overwhelming to handle alone, and she thought she needed to go back to the hospital.

We arrived at the pediatric ER around 2:00. We met with the intake nurses and pediatrician and social worker. We waited for word about which hospital had a bed and would accept her into the program. I called and texted my husband (who was home with the boys) and my parents and my siblings with updates through the night. The food service people delivered Princess’ dinner to the adult ER, so it was cold by the time we hunted it down, but she ate it anyway. They fixed another dinner for her, so I ended up getting to eat something, too. The ambulance transport came just before midnight. I took my car and agreed to meet them at the hospital.

About halfway to the hospital, my car blew a tire. I sat at the side of the highway, sobbing so hard I thought I would vomit. My  husband called the pediatric ER staff, who called the transport company, who contacted the ambulance driver to  have him come back to get me. Another bus from the same transport company arrived a few minutes after we did, so the drivers kept me distracted with their chatter. I barely remember filling out the paperwork for the intake. The coordinator on the unit asked me if I had a ride home, and I asked her to help me call a cab. She did one better- she arranged for a transport voucher for me, since I wasn’t sure I had enough cash on me to pay for the 40 minute ride home.

I got about 3 hours of sleep before taking the boys to school and coming into the office. My boss is wonderfully understanding and supportive, and is allowing me to make my schedule day by day depending on what I feel I need. I don’t know what it is I need, though.

I am still standing, and I know that Princess is getting the help she needs. This is a different hospital than the one she was in during May. That program seemed to work then, but the doctor’s willingness to dismiss my suspicions of a biploar disorder bothered me. This hospital seems more open to the possibility that there is more going on than her anxiety/depression. And we will once again find our light at the end of the tunnel

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Slip Slidin’ Away

August 25th, 2010

The thing about slipping away, slipping under, the light getting smaller and smaller, is that you don’t realize it’s happening until it’s too late.

You’re going along, not thinking about how things are getting incrementally harder because you’ve always had days that are harder. And then get better. And then harder again and then better again ad nauseum until you are pretty much used to the ride. You don’t consider it remarkable anymore because it’s your “normal” life.

But the black hole is sneakier. The days get harder and harder. You’re waiting it out. You know if you just get through another day, things will get better again. So another day passes where you’re holding on with both hands. Then one hand. Then a few fingers. Then you notice your fingernails are torn and bloody stumps and finally, FINALLY, you realize you’re not going to be able to get back up. You are losing your grip completely and it’s too late to take precautionary measures. Way to late for that.

It becomes a life of lying under the water, looking at the world through goggles and trying not to think about all the ways you could die. Accidentally, of course.

And then it becomes a life of trying not to think of how to die on purpose. And you can’t even see out of the water anymore. Someone turned out the lights. You can’t hear or see or feel anything but extreme sad and bad and guilt.

“I’m trapped!” I yelled at the psychiatrist yesterday, “I can’t stay here and worry everyone while my mother-in-law has stage4 cancer and I should be taking care of her! I can’t go see family because they would worry the whole time I’m there! I can’t stay alive because this is how things will be the rest of my life – up, down, up, down – I can’t do it anymore! And I can’t kill myself because my kids would never get over it!”

It feels like I’m trapped in hell.

A med change is underway. I don’t feel better, I feel weird. Even more distant from my surroundings and I care even less.

I can write this because I’m a writer and this is what I do. I can’t change anything in my brain because this is how I am. I haven’t stopped crying for over 2 weeks and I shake all the time. I don’t want food. I only want to drink and fall asleep. But I don’t. I just think about it. Because maybe I won’t wake up. That would be nice.

My husband says, “There are lots of people who want you around, and alive. I love you Leah. You are valuable and precious.” I hear it but I can’t hear it because it feels like a lie. I didn’t think I would get married again after my divorce in 2002. I figured no one should be married to the mess that is me. But, I did marry. And he’s wonderful. And I fill his life with stress and drama and worry. In loving him I’ve ruined his life. If I really loved him, I would leave him.

This is the black hole talking. In this flash of sanity, I know it. But, sometimes the black hole just takes over everything and reason and sanity are nowhere.

Originally posted on Leahpeah

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Ketamine for Bipolar?

August 24th, 2010

From the Vancouver Sun -

A new antidepressant being tested in Canada appears to do what no other drug can — increase connections between brain cells within hours to swiftly improve symptoms.

The finding by Yale University researchers may explain how one dose of ketamine can reduce symptoms of depression within 40 minutes among the hardest-to-treat cases, and could help spur development of quick-acting antidepressants.

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Flight From Darkness, Exploring Bipolar Disorder

August 13th, 2010

Mathematician and Physicist Percy Paul is afflicted with severe Bipolar Disorder. He believes that his manic states allow him access into creative thought patterns. The curse is the resulting depressions that endanger his life.

Watch a 2 minute preview here.

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The Friction In Your Genes

March 1st, 2010

It’s not until he mentions it that I realize that he’s funnier than he’s ever been before.  I’ve been sitting here, drinking coffee with him—my middle brother, 3.5 years my junior—for an hour, maybe.  And I’m just now realizing that I’ve been laughing with him far more than I usually do.

Funnier, yes—and talking fast, loud.  I can barely get a word in edgewise as he quips, his words darting faster and all around me.  He pulls faces, laughs, then stops.

I feel stupid, because I maybe wouldn’t have noticed if he hadn’t said anything about it.  Quieter, now—“I’m going to go see somebody, one of the counselor’s at school.”  He talks about how he’s fucked things up, how he lost his girlfriend of more than a year by being stupid.

He’s the same age I was when I fucked things up.  21 and change.  The age where everything starts to come together, when your body feels electric with the burden of the future and the prospects of freedom and responsibility start to wind themselves around your ankles.

And I envy him, if only a twinge, before I am suddenly scared for him.

***

(remember)  What it’s like to be told in a room by a man that you have a chronic illness that will never go away.  And it’s something that’s inside you—it’s something that you’ve always thought is you.  Because it’s in your head—in your brain—it’s hard to separate out the sick part.  You start the never-ending data-mining, the perpetual jump through funhouse mirrors—you decide what to keep and what to put away in a box marked “other.”

You are stricken by two dual forces.  One.  You would never wish this fate on your least favorite person.  Think about childhood bullies and mean bosses.   You may wish for them to die, but you’d never wish for them to feel this way.  Two.  There’s a genetic component.  A much higher likelihood than you’ll admit that someone you love will do this too.

These forces get inside you and they explode your heart.  Pieces of it go everywhere, flying into all of those they love.  You understand that quote about your heart walking outside of your body.  You live with it every day.

***

And still, I dare to dream about a normal life, ignoring the fact that I took a left turn from normal years ago.  Once upon a beautiful time, I had a coherent line of sight.  I was engaged, had a wedding planned for June 14th, 2008.  I wanted to go to school, get married, start thinking about children.

The words “bipolar disorder” make everything so fucking complicated.  When they find out that we’ve been dating for seven years, even casual acquaintances ask about a ring.  I laugh it off.  I say that we’re taking our time.  I don’t mention that we were engaged.  I don’t tell them that we’re not engaged now because I contracted a case of the crazies and went about fucking schoolboys while my fiancé worked at 5 AM on Saturdays to pay for my ring.  When I think about it, my jaw starts to hurt from the clenching of my teeth.  My lungs are filled with air that won’t be pushed out.  I take a look at the path at the fucked-up path of burnt-out bridges that lay behind me.  How do you explain this?  How do you make sense of something that feels so senseless?  How do you do anything but move forward, blindly, spouting platitudes and bullshit about taking your time.  Taking the long way.  Going the whole distance around your ass and still, somewhat improbably, coming out ok.

***

In the review session for my neuroscience final in my first year of medical school, the question is posed: “What is the heritability of Bipolar Disorder?”

The answer I’ve learned to parrot is:  “Autosomal dominant, but with partial penetrance.”

In my head, it sounds more like: “You are playing Russian Roulette with your future children’s lives.”

In these moments—among others—I am forced to contemplate the ghost-children who will someday tumble out of my womb, with so much potential for brilliance and pain lying latent their skin.

In the dark, I will whisper to them that my genes do not determine their fate.  Then—and now, even now—I will whisper it to myself.

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Who You Are – Laura

February 3rd, 2010

People call me/I call myself Laura.

I see myself as scatter-brained but loving. And loved.

If I thought you cared and you were listening, I would tell you I have a bipolar depression and anxiety disorder diagnosis. Sometimes I wonder if the drugs are working, or if it’s a misdiagnosis because I feel pretty good these days. Then I forget to eat or take my meds or I drink too much and I fall down the hole again. Some days I want to do so many things, and others I want to do nothing but sleep. I can’t focus on getting good at one thing, or getting one thing done well. Why can some people manage and lead well but other struggle?

I am struggling with so much distraction. And I eat too much to soothe my anger and frustration. I want to get unstuck and feel untrapped.

Something I have been keeping a secret is how upset it makes me that I don’t have a child, and how I am so frustrated with my husband. I would like to adopt a child but he has said that is a deal breaker. I have examined, at length, why I want a child so much. Is it selfish to want a kid? Is it selfish to not want to raise a child? I’m not right with this. I put on a happy face to make my friends feel comfortable, my husband happy, and my parents satisfied.

I am trying to think positive and something I’m good at is connecting people. And I love learning new things and meeting new people. Pretty simple.

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Where Do I Go From Here?

January 29th, 2010

By Dianna

Where do I go from here? Once again I feel my life spiraling out of control and have nothing with which to stop it. I am a logical person. I know what I should do to make myself feel better, however I seem to have no way of stopping myself from doing what I shouldn’t do.

When I get nervous and feel disliked in a situation, I drink. When I am manic and feeling like the world is mine and everyone should bow to my amazingness, I drink. When I drink, I inevitable fail and the all consuming guilt spirals into depression.

This weekend I celebrated my friend’s birthday. Her friends don’t like me. Perhaps the best thing was not for me to point out how one particular friend of hers doesn’t even say hello to me and shoots daggers at me with her eyes. They make me feel uncomfortable and she herself, always seems to want me to act a different way, or be a different way, and I try to tell myself it’s all in my head and than I feel bad, but perhaps maybe it isn’t.

That night, I separated myself from the group. Instead of talking to them, I talked to strangers. People who didn’t make me feel disliked and uncomfortable. People who listened to me and didn’t tell me I was talking too loud or act as if I was embarrassing them. They left me at the restaurant and I had to find my own way to the bar. Then, they left me at the bar and I had to get myself home. No matter how poorly I was behaving, how can that be the way to treat a friend?

Here I go again. One more friend down. When you only have 3 left it’s a sad and lonely place to be.

Being bi-polar is not conducive to friendships, and those you do find generally are engaged in the same self destructive behavior you should avoid like the plague. It gets you nowhere real fast. Yet, no matter how many times I am told “it’s not my fault”, no one else seems to believe it or wants to take the effort to understand that. And sometimes I just don’t believe it.

Whose fault is it if not mine? I’m the one who chose to have sex with strangers, to put things up my nose that shouldn’t go there and to put that glass to my lips over and over again.

Today I made it out of bed, albeit late, and I will drag myself to the gym and remember each hour that passes is another chance to begin again.

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