When I picked Princess up from her aftercare program on Tuesday, I had a message that the school counselor wanted to see me. Princess and I gathered her things and sat down in the counselor’s office to talk. The counselor relayed that another student came to her to say that Princess had indicated that she was planning to bring a knife to school for the purpose of stabbing herself or cutting her throat. She’s never articulated a plan before, and never expressed thoughts so boldly violent. The counselor advised me that she would need written confirmation from some mental health professional regarding Princess’ abililty to return to class.

We made an appointment with the therapist, and Princess was vehement in saying she did not want to go back to the hospital. She later had an outburst that culminated in her locking herself in the bathroom, refusing to speak to me, and I told her through the door that if I could not get the key to work, I would call 911 and have them break the door down and take her to the ER in an ambulance. She came out, and finally admitted that her thoughts were too overwhelming to handle alone, and she thought she needed to go back to the hospital.

We arrived at the pediatric ER around 2:00. We met with the intake nurses and pediatrician and social worker. We waited for word about which hospital had a bed and would accept her into the program. I called and texted my husband (who was home with the boys) and my parents and my siblings with updates through the night. The food service people delivered Princess’ dinner to the adult ER, so it was cold by the time we hunted it down, but she ate it anyway. They fixed another dinner for her, so I ended up getting to eat something, too. The ambulance transport came just before midnight. I took my car and agreed to meet them at the hospital.

About halfway to the hospital, my car blew a tire. I sat at the side of the highway, sobbing so hard I thought I would vomit. My  husband called the pediatric ER staff, who called the transport company, who contacted the ambulance driver to  have him come back to get me. Another bus from the same transport company arrived a few minutes after we did, so the drivers kept me distracted with their chatter. I barely remember filling out the paperwork for the intake. The coordinator on the unit asked me if I had a ride home, and I asked her to help me call a cab. She did one better- she arranged for a transport voucher for me, since I wasn’t sure I had enough cash on me to pay for the 40 minute ride home.

I got about 3 hours of sleep before taking the boys to school and coming into the office. My boss is wonderfully understanding and supportive, and is allowing me to make my schedule day by day depending on what I feel I need. I don’t know what it is I need, though.

I am still standing, and I know that Princess is getting the help she needs. This is a different hospital than the one she was in during May. That program seemed to work then, but the doctor’s willingness to dismiss my suspicions of a biploar disorder bothered me. This hospital seems more open to the possibility that there is more going on than her anxiety/depression. And we will once again find our light at the end of the tunnel

I wonder, when will the light shine again,

when will the path be crystal clear and back on track?

I’m in charge of that, don’t want to be.

Not today, or tomorrow.  No sirree.

Suffering is a normal part of the human condition, we are not meant to be jolly all the time.  No, we are not.  The fairy tales, THEY LIE.

The sorrow, the sad, the confusion, the ick.

It lives inside of me waiting for the moment when I am weak.  It moves in, full stealth mode and brings the whole ick battalion.

Been here, done this, survived and got stronger.

Ride it out, hang on, keep my pace.

Save my face.

I was diagnosed with ptsd about 5 years ago. I never realized that I could be “shellshocked.” I became obsessed with the stories of veterans, looking for a connection, searching for understanding and symptoms- so I could see what that doctor saw.

From a young age, I had panic attacks – being trapped in small places like elevators, even the dentists office. I could have them in crowded spaces. But then I went for many years without a panic attack. “I’m cured!!” I thought.

Present day: The panic attacks are back- and full force. I can’t even function in the middle of an attack. I have xanax stashed in every corner of my house, work, car. I am frozen. I am out of my own body. I am afraid.

I realized while the panic attacks lay dormant for a while, I was never “healed” of ptsd. The emotional centers of my brain are cauterized. I don’t feel happy, sad, angry, hopeful. I feel levels of anxiety. Low levels of fear are good. I can function. Moderate levels cause me to turn my car around, drive 30 miles back home to make sure I turned off the coffee maker. Extreme levels cause me to go to the secret place on my property and hide. I can’t even tell you where it is because I don’t want you to find me. I have to know I’m safe there.

I need more than this in my life. I have seen therapists and psychiatrists, and at its peak I was seeing three doctors once a week. We all worked together.

I thought I was doing ok. Until my boyfriend said “If I was your husband, I’d have you committed.” Oh.

I have an appointment with a ptsd specialist tonight. I hope she can help me come out of hiding.

As last school year rounded toward its close, Princess had a significant downward spiral.  She began to have thoughts of self-harm and a rising number of anxiety attacks. I got a call from the school nurse on a Thursday afternoon in late May telling me that Princess had tried to choke herself.  Twenty-four hours later, she and I were both sitting in a hospital room as we waited for a placement in a pediatric psychiatric facility.  She checked in on Saturday and checked out the following Friday, but did not return to school until mid-week, and only for the non-pressure events of the end of year carnival and final school day Mass.

We enrolled Princess in an intensive outpatient program over the summer, to deal with her anxiety and further develop both her coping skills and her socialization with her peers.  Upon the advice of the medical staff at the hospital, we took her off of her ADHD medication (stimulants often exacerbate anxiety disorders) and increased the dosage of her anxiety medication. While the journey is far from over, she did learn to identify the anxiety-provoking situations and ways to keep them in proper perspective and cope with them in the best way she can.  Much of what she has learned hasn’t been put to the test yet, but she has been more cooperative at home and less likely to freak out on her brothers (which is no small feat, given Hoss’ potential for anger outbursts as a result of his mood disorder).

I remain nervous.  While the elimination of the stimulants for the ADHD is likely a good idea (the hospital staff noted Princess’ ability to focus on her work without the meds, leading to a conclusion that her previous issues may have been driven by anxiety instead of inattention), it has been close to impossible to address the anxiety created by being in middle school and dealing with the school day.  Middle school kind of sucks, even for a “normal” twelve year old.  Kids can be cruel, either by intent or by ignorance.  Add an anxiety disorder and some established socialization issues to that mix, and it’s going to be a hard road for my baby to face.  And I am once again helpless to make it OK.

It’s definitely unhealthy.  My eyes have gotten twitchy.  I wake up in the middle of the night worrying about work, needing to get up and jot down to-do lists that might otherwise be lost by morning.  Then I can’t get back to sleep.

I’ve started to feel panicked, claustrophobic, like a prisoner in my own life.  The place where I work has no windows.  It’s possible to completely lose perspective there, to forget that life goes on outside, that just across the road is a beautiful park filled with birds, butterflies, and flowers.  I don’t even have five minutes to go out and look at it.  I can’t even go to the bathroom without four people stopping me on the way there to ask me questions or tell me what they need from me.

I feel like I don’t know who I am anymore.  I’m just this robot that works and works and works.

It’s a temporary thing.  It’s all on account of a big project that I’ve been working on, starting in January and already on the downswing.  A couple more months and I should be able to breathe again.  Still.  It’s a long time to go without breathing.

In the past few weeks, I’ve had the opportunity to get re-acquainted with anxiety.  I forgot how involuntary it can be.  I could be consciously thinking about anything, even engrossed in conversation with a friend, when suddenly my ears start burning, my heart starts pounding, and I wonder if I’d better run to the bathroom because I might actually puke.

Consciously, I believe that I can handle it all.  I love my job, and I don’t resent being the manager who has to stay calm and absorb the anxieties of everyone else who needs to blow off steam during the workday.  I get satisfaction from seeing someone leave my office feeling noticeably better than when they came in.

But later, I wake up in the middle of the night with my pulse pounding in my ears, and I can’t get back to sleep without a shot of vodka.

There are other things, personal relationships, adding to the stress pile.  Nothing I can do to change that.  The relationships are what they are, and I just have to feel my way through them until they become clearer.

I’m coping by doing as little as possible on evenings and weekends.  The occasional outing to see a friend is healthy.  Otherwise, you’ll find me parked in front of the TV, giving my mind and body a neutral environment to rest in.  I told my volunteer position that I can’t take any shifts for the next few months.  I’m letting my husband do most of the housework.

I don’t anticipate any let-up in the stress for at least another few months.  But still, it’s only temporary.  I’ve survived worse.  I’ll make it through.

I do not want to fully go to the place where the surroundings are dark, cold, and wet with sadness.

I must find the way out of this tricky terrain of blinding emotions, I must get in MOTION.

Hark!

I will move out of this place, I won’t stay.

Perhaps it is necessary for me in order to move on to the next chapter.

YES!

It’s time.

To move onward, to push forward.

To get the fuck back up.

I can and I will, my will is strong.

Falling, slipping, skinning my knees is to be expected but not enough of a reason to keep me down.

Look for me I’m still there, wave as I walk past.

Journal Entry: April 30th, 2006-

What have I sacrificed and why have I done it?

Every day I sacrifice healing in trade for coping.  If I can just put off the tears for a few more minutes then I know I can make the bed, feed the children and laugh.  Ha ha, I am laughing, see.  If I sacrifice the coping, the day to day then I am trading for pain and sadness.  I am opening the door to such grief and heartache.  What if it doesn’y stop?  What if i drown in it all?  What if I work through everything only to discover what I fear the most is true?  What if it really is my fault?

My sacrifices are selfish although they appear to be about other people a lot of the time.  I watch my sister’s kids so she can heal.  I take my kids for a walk even though it hurts because I know they’ll have fun.   It goes on but ultimately I do it all to avoid the darkness.

The sacrifice of birthing was not my own.  It was no choice to be made by weary  minds and souls.  Birthing happens; the sacrifice comes with the pieces you give freely along the way.  I gave more than was asked, had even more taken and in the end I don’t know who was supposed to be benefiting.  So I crawl now on battered bones with heavy heart, knowing my sacrifice was unwanted.  My sacrifice was for naught and only brought terror and pain, ugliness and black.  It was my fault and I have to live with that, my family has to live with that because of me.  I am so guilty.  I am so guilty.

Returning to today…

In April of 2006 I was still deep in the caverns of guilt ridden, self-examination and sacrifice with the determination to find a resolution to my suffering.  My baby was 1 day shy of 4 months old.  I was 6 days past my 29th birthday.  Today my daughter is a mere 15 terrifying days away from turning 4.  I am 4 months and 8 days short of turning 33.

Too long a sacrifice

Can make a stone of the heart

Oh when way it suffice?

-William Butler Yeats 1865-1939

Has my heart turned to stone yet during these past years?  Have my sacrifices become more genuine or are they mostly imagined and martyr-ly?  I don’t know if there is a valid way for me to tell.  I think it is likely one of those things where 10 people in a room would all give you varying answers.  I  need to turn to my stony heart for answers and for that I need a sharpened pick ax and a strong swing.

I am finding myself.  I could easily end that sentence right there but I had intended to go on.  I am finding myself with so many questions these days.  I can answer some with a quick trip to Google or a phone call.  I can hide under the covers and cry until I determine the reply to another query.  And there are still millions that make my heart race or my eyes glaze over from either panic at maybe never knowing or trying so hard to find the answer that I get stuck deep in my cerrebellum.

Sacrifice?  Happiness?  A time to make new memories?  Write more or less?  Does cleaning under the bed really matter?  How do I love better and be loved better?  Can I be whole?  Is my racing heart just a glistening rock with channels worn through it for blood flow?  What is it that makes Trader Joe’s Peppermint Jo-Jo’s so hard to put down?

How will I ever make it through another one of my baby girl’s birthday’s when I am struggling so much with just talking to her about the act of being 4?  What cruel power planned December to go: Hannukah, Christmas Eve with the in-laws, Christmas, drive for 2 1/2 hours for 3 days of Christmas with separate parents out of state, week of mandatory furlough (yeah no pay!), New Year’s Eve/Wee Girl’s Birthday/Trauma Flashback Day?  For real?  This makes sense?  Was I really cruel to the serfs in my fiefdom?

As we approach the end of 2009 I hope it comes with an end to the types of sacrifice that turn beating hearts to solid stones.  Maybe we can all be lucky enough to be left with the sacrifices that warm you with a sense of completion and an eagerness for more.  Zora Neale Thurston writes in Their Eyes Were Watching God that there are years that ask questions and there are years that give answers.  I am hoping beyond hope that 2010 is a year that comes with some answers or at least more multiple choice questions.  When in doubt you can always pick “C.”

He and I are a bit like Jack Sprat and his wife, reversed.  He struggles not to overeat.  I can’t seem to gain an ounce.  Granted, I do exercise more and snack less than he does, but in the final analysis most of the credit for my low BMI goes to luck.  I have skinny parents.  He doesn’t.  It’s not fair, but that’s life.

When I’m feeling good, it doesn’t matter.  My husband is a handsome man with smooth skin, a mischievous glint in his eye, and an alluring dimple when he smiles.  He also has very charismatic eyebrows.  And sexy hands.  Perfectly straight, white teeth;  a cool haircut.  Women flirt with him, and love it when he flirts with them.  His waistline isn’t big enough to overshadow all his attractive features.

Frankly, if you could give me a guarantee that my husband would live until at least the age of 85, I wouldn’t care about the bean lump.  It’s not an issue of insufficient superficial beauty.  I count my lucky stars every day that the wonderful man I married happens to be so good-looking.

However, when I’m anxious and under stress, I can’t ignore the bean lump.  It taunts me.  Bullet points from magazine articles about Metabolic Syndrome scroll across my mind’s eye like quotes along a stock ticker.  I’m sure he’s going to get diabetes.  I’m sure he’s going to die of a heart attack.  How selfish of him to abandon me through an early death!  He loves bacon more than he loves me!

Technically, he could be doing more.  He says he has “no time” to exercise, when I know he spends at least 4 hours every night playing on the computer or watching TV.  He swears off snacking for a while, and then I start finding wrappers in the garbage and unwashed plates in the sink when I get up in the morning.  When he orders a side of bacon with his brunch, I bite my tongue.

The thing is, I know he’s doing his best.  I’m not the only emotionally fragile person in this house.  He has his limits too.  While he may have time to exercise, I know that he doesn’t have the emotional stamina to deal with it.  He took up jogging for a few weeks two years ago.  Every time he came home, he talked about how much it sucked to be “that fat guy trying to run”.  Everyone else on the track was fast and athletic.  That was outside, at night, in the dark.  I can sure understand why he hasn’t been able to face a brightly lit gym.

Yes, he eats compulsively sometimes, but do I have any right to get on his case about that?  He doesn’t smoke, drink to excess, gamble, or get too wrapped up in online gaming.  His family has a history of alcoholism.  He’s had a rough past.  All things considered, if all he does is eat a whole big bag of potato chips at 2:00 am every once in a while, he’s doing pretty good.  In fact, he’s doing excellently, and I’m proud of him for coming as far as he has.

But when I’m down and nervous, all of that counts for nothing.  All I can see is his early death, the funeral, and an old age of loneliness and endless grief stretching before me.  The bean lump may as well be a tombstone hanging around his neck.

I always think that I’ve got myself under control.  I tell myself that I’m doing fine.  But my resistance slips.  Although I should know better, I justify to myself that I can make this comment, leave that article on exercise out for him to find, because it’s “for his own good”.  Then we fight.

“Do you think I don’t know that I’m fat?” he asks me sharply, wounded.

“I have to look at this” (he grabs his belly) “every day in the mirror.  I’m the one whose pants don’t fit.”  By the time I’ve realized my mistake, it’s too late.  I have failed to love him unconditionally.  I’ve basically told him that he’s not good enough.  And guess what happens when he feels bad about himself?  He eats for comfort.  He lies around more watching TV because the stress of fighting is exhausting.

He also gets that I’m trying to control him, and he doesn’t like being controlled.  What better way to rebel than by doing exactly what I don’t want him to do? 

Hello, self-fulfilling prophecy.

I hate the ugliness in my head when I fall down that hole.  I hate that I never learn, that I make the same mistake over and over again.  Once the words are out of my mouth I feel so stupid, like the biggest dolt that ever walked the face of the earth.  I’m a bad wife.  I’m a crappy friend.  I’m a mess.

Every day I try to live up to my ideal: take life as it comes, and leave the things I can’t control up to God.  Be grateful for what I have when I have it.  Don’t grasp.  Don’t presume that I can know what the future holds.  Anything could happen.  Life has surprised me more times than I can count, and the surprises are often good ones.

Or, let’s say that my worst fears will come true.  What then?  What if my husband is destined to have a heart attack and die at a young age?  Do I really want to spend our remaining days together fighting over whether or not he puts too much butter on his pancakes?  I can enjoy what I have while I have it, and be grateful for every second.  I can be open to uncomplicated joy.  I can be fully in this moment, with all of my heart, without conditions.

He’s doing his best.  I can see that.  He puts in 110% effort every day, and that has to be good enough. 

I love him so much.  I hope that we both live long, happy lives together.  But the only thing I can truly reach for and achieve is long, happy moments, right now, one breath at a time.

There is no chain to count the heart wrenching marking of days that began sometime in the last few weeks and surprised me with its “still crazy after all these years” presence.  My daughter’s birthday is, oddly enough, also the anniversary  of her birth and thusly of what is one of the worst days of my life in spite of the amazing ten fingered, ten toed little beauty that came with it.  New Year’s Eve 2005 marked the beginning of years of a new sort of distress that my brain wasn’t used to regardless of the years of training in mental dysfunction I had.  Post-partum depression and a fresh batch of PTSD.   I hid it mostly, for the first year but by her first birthday I was shocked to wake up in a sweat.  Not long after that I was waking up very differently and without my little girl beside me.

I have worked so blessed hard to get better from this, let alone the mental and physical scars from days gone by.  But each year as December rolls in my chest tightens and breathing gets that much harder to manage.  The spirit of celebration is masked by fatigue, flashbacks and restlessness.  Fear and anticipation of The Day’s arrival choke me and leave me feeling split in two with a cleaver, as though anybody could see the wretched ache inside me.  Anybody could prey on it.

Yet this is my precious little one’s birthday and I should be struggling with pink streamers, glittery balloons and foolish party hats- not symptom control.  I know though that I need a second by second plan for that day from the moment I wake up to when I take an extra sleeping pill to fall asleep.  Without a round the clock plan there is too much room for emotional disaster.  4 years after my baby was taken from me so easily while I cried out until I was helped to calm down by a syringe and an anesthesiologist who turned blurry in seconds- and I am still stuck.  The distance is still there in little places throughout the year but on what should be her day and her day alone I am still having to distance myself from the moments, the day, from HER.

I would like to say that I will return this topic and release more.  Not just for myself but because somewhere inside me I know I must not be the only one.  And I DO believe that I am not the only with anniversaries of pain and mental paper chains to count down.  However, I am still not through the paper links.  There are still rings for children to argue over ripping before the arrival of that day of days.  The day when the whole world celebrates a fresh start, my daughter is showered with “my haven’t you growns” and I pray for a knock out pill that will keep me standing but get me through the day without feeling the sharp sting of tears or pulling of scars.  So I can’t really say that I’ll get back to this soon because I don’t want the pressure and I don’t want to rope myself into failure right now.  When the time is right I will share more and as always I welcome (very nearly plead with) you to share with me, on site or via email.

My daughter is nearly 4 years old.  Not a baby anymore and oh so bright and beautiful.  She is my love and my light and I hate and fear that one day she will read my words.  I never want her to blame herself for my swollen eyed, frantic Decembers and stumbling Happy Birthdays.  I never want her to feel the depth of my depths and feel like she dug the pits herself.

I hope that she will teach me to love December 31st for what it is- her birthday and New Year’s Eve.  I hope that one year I stop calling it the anniversary of her birth and my mental countdown will disappear.  I will only hope to be able to stay awake long enough to watch the ball drop with her and the rest of my family beside me.  She was born on a day of worldwide celebration.  There will always be a party on her birthday (god save me on her 21st!) even if I can’t throw it.  Her bounce, her giggle and her clarity of vision has fueled my breaths, my heartbeats and my kisses for 4 difficult years that I would never trade.